laryngectomees

Gathering, May4, 2011

2011-05-07T06:43:00.000-07:00

Mr Machraila

2011-04-14T21:01:00.000-07:00

Gathering with new member

2010-07-01T21:22:00.001-07:00

Activity Reports

2010-04-09T11:19:00.000-07:00

Member of The Indonesian Laryngectomees’ Association 1997-1010

Year	Registered		Died	Passive	Active
	Male	Female

1997	16	1	2	13	2
1998	7	1	0	7	1
1999	11	0	5	6	0
2000	8	1	1	8	0
2001	8	3	3	6	2
2002	9	1	1	8	1
2003	6	0	1	3	2
2004	4	0	0	4	0
2005	7	0	1	4	2
2006	16	0	2	12	2
2007	6	0	1	4	1
2008	7	0	1	2	4
2009	7	0	0	0	7
2010 (until Apr 7)	4	0	0	0	4
SUBTOTAL	117	6	18	77	28
TOTAL	123		123

Member of The Indonesian Laryngectomees’ Association 1997-1010

Active Members and Their Level of Esophageal Speech Ability

Level of Esophageal Speech Ability	Number of active member(s)
Basic
Basic 1	5
Basic 2	7
Basic 3	2
Intermediate
Intermediate 1	1
Intermediate 2	1
Intermediate 3	4
Expert	6
Using device	2
TOTAL	28

Level of Esophageal Speech Ability Criteria:

Basic 1 : able to blow, able to produce burping sound intentionally

Basic 2 : able to make vowel sounds, able to talk in partial words

Basic 3 : able to pronounce word(s)

Intermediate 1: able to speak in sentence(s)

Intermediate 2: able to read texts

Intermediate 3: able to make a speech

Expert : able to sing a simple song, able to shout at the distance of ± 5 meters

Committee of The Indonesian Laryngectomees’ Association 2009-2011

(Elected on November 11, 2009)

Patron	Nury Nusdwinuringtyas,MD (Physiatrist)
	Herlina (Speech therapist)
Advisor	Mr. Tobing
Chairperson	Mr. Edison
Vice Chairperson	Mr. Chairul
Secretary	Mr. Zainuddin
Treasurer	Mr. Eddy S.

New dvice for new voice

2009-11-13T21:52:00.000-08:00

Vote for new president

2009-11-13T21:49:00.001-08:00

Rehabilitation Program for Laryngectomee's patient

2009-11-07T18:41:00.000-08:00

Heaven

2008-11-27T06:02:00.000-08:00

Voice evaluation

2008-11-01T02:26:00.000-07:00

P Soetarto-

2008-09-20T17:14:00.001-07:00

Mr Budiman-from Papua

2008-05-26T08:37:00.000-07:00

question and answer- Feb, 27- 2008

2008-05-18T10:56:00.000-07:00

Gathering

2008-04-13T02:03:00.000-07:00

DIVA

2008-04-13T01:56:00.000-07:00

new leader

2007-09-08T18:05:00.000-07:00

New leader for laryngectomees club

On the middle of August 2007, new leader has elected . As democratic as possible, they got four names . As the results: Mr Zaenal!!! Congratulations

Mr Zaenal, the new president of Indonesian Laryngectomees Association

Stoma cover

2007-08-29T15:18:00.000-07:00

Rudy uses handkerchief to cover his stoma

Pak Darmono has his own style stoma cover

The stoma need to evaluate

Pak Darmono uses mirror

mr Syafei- the newest member

2007-08-12T04:04:00.001-07:00

operation : a year ago
communication : electrolarynx

New Voice- using Electrolarynx

2007-06-27T18:14:00.000-07:00

Electromechanical Speech

Within this group, there are transcervical and intraoral devices. Both rely on the principle of introducing an electromechanical vibration that can be heard as a tone. The transcervical device (e.g. Servox) is placed against issue of the neck that will transmit the tone to the oral cavity (figure 1.1). The remaining intact structures of the vocal tract (tongue, lips and teeth) will modulate the tone. This articulation will than produce speech. Devices like the Servox are rechargeable and have volume and pitch control

If you want to hear his new voice, please click this video below.

For another method, Blom- Singer, please clicktanpa-pita-suara.blogspot.com

Meet mr Dalijan, with his Blom-Singer voice
Enjoy

STOMA

2007-05-23T16:22:00.000-07:00

NORMAL SIZE

SHRINKING

Mr. Zaenal using his canul almost every night. His stoma going to shrink

Dancing, singing, poem

2007-05-14T08:30:00.000-07:00

about larynx

2007-05-13T01:44:00.000-07:00

Cancer of the larynx accounts for about 1.2 per cent of new cancers in this UK. Tumors may develop on or just above the vocal cord.

Symptoms

Cancer of the larynx develops as aniregularity on the surface of the vocal cord. The causs the normal vibrator of the vocal cord to be disruted so speech sounds rough or hoarse. Anybody who complains of hoarse voice lasting longer than a month should be reffered to an ENT (ear, nose, and throat) surgeon for examination.

An endoscopic examination is often performed , to give an early indication of the presence of cancerous. If the ENT surgeons suspects that a tumour is present, a biopsy will taken.

If the ENT surgeon suspects that a tumour is present, a biopsy will taken.

Dangeraous of Tobacco

2007-04-20T15:17:00.000-07:00

Just the Facts…Smoking & Tobacco Use

Tobacco use, particularly cigarette smoking, is the single most preventable cause of death in the United States. The number of deaths per year from smoking exceeds the number of deaths per year from all accidents, suicides, drug use, homicides and AIDS combined. An estimated 45 million U.S. adults are smokers, and more than a third of all U.S. high school students smoke cigarettes.

What are the effects of cigarette smoking on cancer rates?

Cigarette smoking causes 87 percent of lung cancer deaths (1). Lung cancer is the leading cause of cancer death in both men and women (3). Smoking is also responsible for most cancers of the larynx, oral cavity and pharynx, esophagus, and bladder. In addition, it is a cause of kidney, pancreatic, cervical, and stomach cancers (2, 4), as well as acute myeloid leukemia (2).

Are there any health risks for nonsmokers?

The health risks caused by cigarette smoking are not limited to smokers. Exposure to secondhand smoke, or environmental tobacco smoke (ETS), significantly increases the risk of lung cancer and heart disease in nonsmokers, as well as several respiratory illnesses in young children (5). (Secondhand smoke is a combination of the smoke that is released from the end of a burning cigarette and the smoke exhaled from the lungs of smokers.) The U.S. Environmental Protection Agency (EPA), the National Institute of Environmental Health Science’s National Toxicology Program, and the World Health Organization’s International Agency for Research on Cancer (IARC) have all classified secondhand smoke as a known human carcinogen—a category reserved for agents for which there is sufficient scientific evidence that they cause cancer (5, 6, 7). The U.S. EPA has estimated that exposure to secondhand smoke causes about 3,000 lung cancer deaths among nonsmokers and is responsible for up to 300,000 cases of lower respiratory tract infections in children up to 18 months of age in the United States each year (5). For additional information on ETS, see the NCI fact sheet Environmental Tobacco Smoke, which can be found at http://www.cancer.gov/cancertopics/factsheet/Tobacco/ETS on the Internet.

What harmful chemicals are found in cigarette smoke?

Cigarette smoke contains about 4,000 chemical agents, including over 60 carcinogens (8). In addition, many of these substances, such as carbon monoxide, tar, arsenic, and lead, are poisonous and toxic to the human body. Nicotine is a drug that is naturally present in the tobacco plant and is primarily responsible for a person’s addiction to tobacco products, including cigarettes. During smoking, nicotine is absorbed quickly into the bloodstream and travels to the brain in a matter of seconds. Nicotine causes addiction to cigarettes and other tobacco products that is similar to the addiction produced by using heroin and cocaine (9).

How does exposure to tobacco smoke affect the cigarette smoker?

Smoking harms nearly every major organ of the body (2). The risk of developing smoking-related diseases, such as lung and other cancers, heart disease, stroke, and respiratory illnesses, increases with total lifetime exposure to cigarette smoke (7). This includes the number of cigarettes a person smokes each day, the intensity of smoking (i.e., the size and frequency of puffs), the age at which smoking began, the number of years a person has smoked, and a smoker’s secondhand smoke exposure.

How would quitting smoking affect the risk of developing cancer and other diseases?

Smoking cessation has major and immediate health benefits for men and women of all ages. Quitting smoking decreases the risk of lung and other cancers, heart attack, stroke, and chronic lung disease. The earlier a person quits, the greater the health benefit. For example, research has shown that people who quit before age 50 reduce their risk of dying in the next 15 years by half compared with those who continue to smoke (3). Smoking low-yield cigarettes, as compared to cigarettes with higher tar and nicotine, provides no clear benefit to health (2). For additional information on quitting smoking, see the NCI fact sheet Questions and Answers About Smoking Cessation, which can be found at http://www.cancer.gov/cancertopics/factsheet/Tobacco/cessation on the Internet.

What additional resources are available?

For additional information about cancer or tobacco use, call 1–800–4–CANCER or visit the NCI’s Web site about tobacco at http://www.cancer.gov/cancerinfo/tobacco on the Internet.

For help with quitting smoking, call NCI’s smoking cessation quitline at 1–877–44U–QUIT or visit NCI’s smoking cessation Web site at http://www.smokefree.gov on the Internet.

On top is a picture of severe cancer of the larynx, which has surfaced on his neck and spread to his lymph glands. Most laryngeal cancers begin near the vocal cords, causing hoarseness or other changes in the voice.

http://www.cancer.gov/publications

Why stoma should be permanent

2007-04-06T12:35:00.000-07:00

They could not breath through their nose again after vocal cord removed. The absent of vocal cord due to cancer, cause a short cut must taken to catch the air for breathing. Stoma will be permanent, use to take air.

Stoma care

2007-03-30T16:39:00.000-07:00

From Nury:

The airway opening straight to open air.

There is no mechanism to protect .Use stoma cover, put upon your neck.

Clean the mucus frequently.

Tips for you

2007-03-24T02:37:00.000-07:00

Larynx

Normal

Cancer

Mr Karoon said:

Never give in life

After 2 -3 days of surgical larynx operation, they will feel painful, weary and exhausted. It is the time of excruciating while they cough, be sucked the phlegm.

After one week the patient can stand up walk and eat . the physical strength will soon regain.

Reading books , and taking a rest.

Start recovery from illness

While staying for convalescence at the hospitals, they should try to walk around the bed, the building, enjoy eating food and drink a lot of water.

Immediate family

Families are like beautiful and aromatic flowers that take care of patients beside their bed.

Never stay away from the patient.

They send through waves to laryngectomees to regain energy.

Keep off bad temper

Almost all the laryngectomees always have short have short temper because of the lost of voice. They tend to enrage and ruin the belongings and let off teir emotion against their families.

Being calm and continue rehabilitation.

Never feel stress, never become discouraged, will prolong life.

Monitor the cough

Deep breath and keep on swallowing saliva, severe cough will lessen.

In case having tube in stoma, they should hold at the edge of the tubes with the fingers before coughing.

If the tube rub against the bronchial while coughing, it will only trgger more coughing that will worsen the health.

Bye-bye Cancer

2007-03-16T08:13:00.000-07:00

Most of the laryngectomy victims lost the larynx due to smoking. The toxicity of cigarettes not only wipes out all the assets, healthy , but also their lives.
Definetely all cancer are fatal, but their lives many pull through if the operation have done in time. they are still alive, even thogh they become voiceless, there is chance the can start to voice rehabilitate.
Both body in mine.

Above, fotos of 5 gentlemen. Not ordinary one, the all survivals from laryngral cancer. Number two from left side . mr Tobing, the operation done on 1994. already 13 years.

Zainudin, number 4 from left side, diagnosed at 21 years old. Now he is 34 year old, married 5 years ago, and had a daughter.